Howdy it has been a while since I have blogged and for that I am sorry. There really hasn’t been a lot to write about on my end. I am in a holding pattern for the lungs as things are kind of slow on the transplant front here right now. I am as a computer scientist would say in a Queue (a data structures problem so to speak) it is not a FIFO (first in first off) or a push or pop queue. All transplant patients are grouped differently as the selection criteria for the patient to receive the harvested lungs is different for our type of transplant (grouped by body ie. lung size, blood type, antigens and then need is factored in) this equation is a lot easier to figure out than the BCS (bowl championship series) equation is.
My health has been up and down the last 2 plus weeks as I had to battle a viral infection (it is pretty much cleared up now IMMO in my medical opinion). I am still hitting the gym and running out of weights to lift I think I totaled just under 35,000 lbs. lifted on the 11 station fitlinxx workout we do at the YMCA. My neuropathy seems to be getting a little better as I am noticing more phantom pains/itches in my toes (so I can almost feel my feet). The increased dosage that I am on now with my oral chemo is really doing a number on my appearance (I look like an Ugmo with breakouts and nutty buddies all over).
That just about brings you up to speed with my current situation work, school, and the gym really keep me busy. I will try to get down to the city SF more since I am feeling much better to take pictures at some of the art galleries and also take some artsy type shots of Half Moon Bay.
Oh yea I was going to blog on how tired I am of needles and techs/phlebotomist digging in my arms over and over searching for collapsed veins (thanks chemo) but I think I may have found an angle amongst the butchers. I am not a wimpy guy but after some of these needle sticks and watching the butchers dig in my arms and hand, wrist, chest, neck... I think I have felt a tear or two b/c IT HURTS especially when they encounter scar tissue. Sorry for the soapbox back to the angel I have found her and although they rotate there staff all over the hospital I got her name and told her I would find her the next time I have to get blood work done. Oh yea after first we did not hit it off so well (the angel and I) that is until I showed her all my track marks and detailed how many times I had been stuck and had needles dug into me at each lab visit (8 times on average). I also told the angel that she gets three sticks to get what she needs and if she can't get what she needs in three we are going to have problems b/c they aren't sticking me anymore, fortunately she only needed to sticks one in my chest (chemo port) and one in my hand. She latter jokingly told me I made her nervous and intimidated her, I didn't want to do either but looking back I could see where I might have made her a little nervous.
Lastly I should be making my last move to the pre/post transplant apartment pretty soon. This move will be good as I will have one less set of logistics issues to worry about after the transplant and I can really concentrate on getting things ready for my wife and daughters to come out for Thanksgiving. I plan to do all or most of the cooking (no fried Turkey this year maybe next) they will have to work on retraining me. I have unfortunately reverted back to my bachelor days of work, working out, and school minus the parties, I was everything in one or two/three loads I never knew I had a tie-dye dress shirt before. I am wearing holey socks, scratching, and belching out loud my ladies really have there work cut out for them.
I have adapted and overcome a hurdled that was thrown in my path out here; it seems that although I am bringing treated for cancer and ultimately the research vulchers want my old lungs to cut-up in their labs, I can't use the Stanford basketball court to walk laps before and after transplant (it is getting cold out here). No fear when one door closes another opens so I found a treadmill for free on my new Ebay which is www.craigslist.org and will put it in my new apartment so I can stay in shape pre/post transplant (the treadmill is most post transplant as I will be wearing a large mask to keep out germs for at least 3/4 months).
Well that is all for now, I know I promised a blog on my initial reaction upon being diagnosed and it will one day be posted but something’s (memories) I don't want to think about right now.
Have a great day