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November is Lung Cancer Awareness Month!
April is National Donate Life Month
Tuesday, March 31, 2009
Sunday, March 29, 2009
Saturday, March 28, 2009
The bronch hurt my joints or the medical staff from the 3 floor must have come in the room during my bronch and pounded on me. My joints haven't hurt this bad in well over a decade trying to get up and function on Sunday after a Saturday football game. I had to ask for some pain meds and several heating pads. Next bronch I think I will wear rib pads and hip pads.
Good news I didn't miss soccer game number 2 soccer game was canceled due to the cold weather in TX.
Looks like I will be burning up the highways between Dallas and Fort Worth next week.
Thursday, March 26, 2009
Sunday, March 22, 2009
Thursday, March 19, 2009
Since this most recent surgery and the cancer recurrence my meds have changed slightly. I take Prednisone (steroid) 5mg once per day and Bactrim double strength on Monday and Thursday now.
With the med change I am now walking a tight rope because my doctors and I are in a delicate balancing act. By lowering my Prednisone I will be boosting my immune system yeah fewer viruses GOOD and fighting the cancer (Jack's army, Jack's brothers, Jackass part two....).
NO ONE SAID IT WOULD BE EASY.
I had to drop yet another class as I was attempting to get my 4th Masters.... through this whole round of medical stuff SMU Bobby B. Lyle School of Engineering has been very understanding and accommodating throughout all of this. I did have a hard time doing the right thing in this situation (dropping the class) makes me feel like I am quiting.
If dropping the class was not enough I really really feel bad that I let Ravyn down today. As I was getting the girls ready for school this morning I told her that I would come and watch her at dance class today. When I picked her up she reminded me several times that I didn't come to dance class today. I had a scheduling conflict due to the war on lung cancer, I was being interviewed by the New York Times which will help break the stigma and raise awareness about lung cancer, but I sure do feel bad about missing dance class (very rarely do I get a chance to go to Ravyn's dance class). I have already promised to attend next weeks class but I already see a conflict there too, I have all day doctors visits in Dallas.
Soccer practice was good Ravyn is becoming more independent and comfortable being in a new environment.
Wednesday, March 18, 2009
Tuesday, March 17, 2009
Monday, March 16, 2009
Sunday, March 15, 2009
My last chest-tube was pulled today. Surprisingly it was not that bad as the previous chest-tubes that I had at other Spa institutions. Apparently they use a different technique here where they place the tubes through the skin and into the lungs in such a manner that the holes are not parallel to one another. No stitches, no pain, just take a deep breath and pull.
I feel bloated since the procedure.
I am now under the care of the post-transplant team and the oncology side of the house; surgery turned me over as they pulled the last tube out. Since the tube was pulled I can taste the rustic taste of blood in my mouth from belches,
Saturday, March 14, 2009
Earlier this week while going to get a sonogram the sonogram person (I don’t know what you call them exactly) almost caused my tubes to be yanked out as she quickly and without any warning tried to lower my head. That crap (replace word if so desired) hurt like hell after about 30+ minutes of cussing I settled down let the procedure take place but come on you have to be kidding me is this how patients are treated everyday.?.?.? That was a story I told my ladies as they are here to visit with me and spend the night. The reason that I told this story to them (TWICE) was because Ravyn seems fascinated with my one remaining chest-tube (I got the other out just a little while ago) she wants to pull on it. Rhonda seems to want to trip over the IV cord hanging from my PICC Line and that is not good. I hope I survive their visit (with my health), like a young child with a pet they are going to love the life out of me.
Thursday, March 12, 2009
I am still stuck in the hospital and raising hell (or getting my point across) while ensuring all those that are charged with my care, management, and recovering understand that we are in a partnership. My definition of a partnership for my current spa treatment is as follows:
I am a patient I demand that information be shared with me regardless of which side of the good news / bad news spectrum it falls on. Communication(s) are key to a good strong partnership.
I am not and will never be the textbook cancer, or transplant patient that most standard of care procedures were designed for.
Schedule treatment with me don’t just sashay your Crocs (another word can be substituted in the place of Crocs) into my room for whatever treatment you are there to give. Respect is a two-way street.
I really hoped to be out of the hospital by now, and I certainly never thought my chest-tubes would still be sticking out of my side.
Wednesday, March 11, 2009
My chest tubes are still in but I am a quick draw on the Morphine trigger (self med). I wonder how long it will take me to recover, it took me 2 years to get to this point I hope I don't need another 2 years to recover.
I will post some pictures later (2 years ago Stanford Transplant, 2009 Surgery Pictures, 2009 Surgery scar it is long and ugly).
Monday, March 09, 2009
Sunday, March 08, 2009
Saturday, March 07, 2009
some random Spa pictures
see the arm pit to arm pit scar, chemo port scar, chestube scar(s), countless other scars
Friday, March 06, 2009
Let try again, attempt number two. 0947 CST
Shower time, looks like the operation will access my lungs through my right side and spread the ribs (that hurts your back BTW) and I still anticipate 3 chest tubes. Are scars still fashionable???
Got gummy bears for the girls, and some coloring pictures and homework (math / sitewords) for Raegan to work on when they visit. I guess we will have to do a better job explaining my illness as Raegan is asking more and more questions about why daddy always goes to the hospital.
Thursday, March 05, 2009
one flew over the cuckoo's nest
It is nice outside I think I will possibly be going AWOL (I have a reputation to keep up), Short Bust (Ravyn) and I had a date scheduled for Friday (we were going to the zoo and ride the train and merry-go-round); guess we will reschedule.
I have been poked, x-rayed, and I think I just signed the stimulus bill; I am burned out from watching the NEGATIVE news; fallen in love again with the hospital food emmm home cooking; and am disappointed in the Cowboys decision about TO his dismissal won't fix the problem.
I expect to set a new chest tube record for one lung, I anticipate 3 chest tubes in my right lung and hopefully they won't be breaking any ribs just using a spreader to separate them which is going to really make my back hurt.
Wednesday, March 04, 2009
Tuesday, March 03, 2009
Monday, March 02, 2009
By the way I like this surgeon, he delivered the info to me by phone after I called and left the message that I was canceling my appointment this coming Thursday if there weren't any results in yet. To drive 100+ miles round trip to just sit in an office, have my vitals taken and talk about possible scenarios would be an inefficient use of all our time. He knows that I have been in this rodeo before and cancer and pending surgeries won't buck me. BTW elephant taste best with ketchup.