click the link above, for events.
November is Lung Cancer Awareness Month!
April is National Donate Life Month
Thursday, December 31, 2009
Monday, December 14, 2009
CT scan(s) showed nothing remarkable (my version of medical speak) they looked all clear, they only noted that they could see scaring from the last surgery. My day still continues though I have more diagnostic test today and to see the skin doctor just to make sure that skin cancer can't pop-up since I am immune suppressed.
Wednesday, December 09, 2009
"I know, I gotta go, I gotta go, and I got one last thing and I said it before, and I want to say it again. Cancer can take away all my physical abilities. It cannot touch my mind, it cannot touch my heart and it cannot touch my soul. And those three things are going to carry on forever."
March 4, 1993, Jim Valvano ESPY Speech
Tuesday, December 08, 2009
I am disappointed that the American Cancer Society for the irresponsible, insensitive statement they made about lung cancer prevention. They just feed the beast with such careless statements like the one they made in reference to lung cancer. The stigma is the beast, it is the ignorance associates smoking with cancer IT IS IRRELEVANT WHETHER OR NOT A PERSON SMOKED NO ONE DESERVES CANCER, NO ONE DESERVES LUNG CANCER SO STOP ASKING, STOP LOOKING FOR A REASON TO BLAME, START EMPATHIZING WITH YOUR FATHER, MOTHER, BROTHER, SISTER, FRIEND, COUSIN, TEACHER, PREACHER..... IN SHORT CANCER IS AN EVERYMAN EPIDEMIC IF YOU DON'T THINK SO READ MY STORY OR FOLLOW THE LINKS I HAVE HERE... YOUR IGNORANCE WILL BE ERASED
CNN.com "Bryant Gumbel reveals lung cancer surgery" December 8, 2009
Lung cancer is the leading cause of cancer death for both men and women in the United States, but it's also the most preventable, according to the American Cancer Society. Gumbel said he and his doctor are hoping his treatment is complete.
Saturday, December 05, 2009
Thursday, December 03, 2009
The recent developments with his health really worry me. There aren't many of us; by us I mean Lung cancer patients that received a life extending bi-lateral lung transplant. Understand you have to be considered medically terminal to receive this experimental treatment but you have to be healthy enough to recovery from this procedure too.
Leave the family comments, they warm the soul, but be respectful of those of us who are immune suppressed we know you care but care from a distance as it is the cold and flu season.
Wednesday, December 02, 2009
Friday, November 27, 2009
week in review
- I got my swine flu shot on Monday
- The CT scan on Monday was not too bad, no IV contrast sickness thanks to my NAC pills; I will get the results 12/14/09
- No black Friday for me unless you count the darkness the grayish / black I see (or don't see) when my eyes are closed and I am asleep.
- The Parade of Lights in downtown Fort Worth was pretty exciting the girls had a fun time, they got so excited when they saw Santa at the end of the Parade.
Monday, November 23, 2009
At the lg txp doctors in Dallas, the CT was painless today and I tolerated the IV contrast; however I am disappointed to know that a member of the post transplant team is leaving it is hard to train new doctors to what your medical condition is and to understand your unique personality.
PFT's were good I am 60% of a normal health person with two good lungs; I think I would be about 67% or maybe 73% if I had two full lungs.
My testosterone was in increased, I am mixing it with the steroids; it is not having much effect on me, I am still green, very green although I want to argue with everyone I even had an argument with myself on the drive over to Dallas today... I think I won the argument
Thursday, November 19, 2009
Wednesday, November 18, 2009
I might one get a SAG card (screen actor guild);....
"What chew talking 'bout Willis"
I think it is an automated computer program that got a hold of my blog address and randomly sends out spam to e-mail addresses and comment accepting websites throughout the Internet.
Tuesday, November 17, 2009
I will need my students to stage an intervention one day, to chew on my ear and get my RearLess body moving especially when I don't want to. One day grasshopper the student will become the teacher.
There is no beginning or end.. Yesterday is history.
Tomorrow is a mystery.
Today is a gift.
Tuesday, November 10, 2009
UT Southwestern, for instance, requested 157,578 doses. The state shows shipping orders for 12,050 doses. But the hospital has only received 3,500 doses, spokesman John Walls said.
Nov. 10, 2009
Sunday, November 08, 2009
Saturday, November 07, 2009
Oh well heading out now and yes my feet hurt (HURT)... I will have to publish older blogs now that I have some time.
Monday, November 02, 2009
Friday, October 30, 2009
- Get the girls ready and off to school
- Take my truck and get the tires rotated and balanced
- Pay some bills and run some errands
- Start some laundry
- Take my wife's car to get the tires rotated and balanced
- Go home and make two lunches
- Eat lunch with Raegan and DOMINATE the class during recess afterwards
- Hurry over to Ravyn's school and listen to story time and have lunch and talk about Halloween costumes with the pre-schoolers
- Run some more errands
- Get some snacks for the after school day care party
- go to the party (yes I was late)
- Hurry home to meet the cable guy, getting some more football channels "duh duh du duh"
- Go back to the school and pick up the cookie order (they couldn't find it)
- Go home wash more clothes
- Go back to the school and finally get the cookies
- Pick up the girls
- Bake pizzas with the girls
- Eat, watch noggin and take it easy it is Friday
- Get ready for the soccer game on Saturday
Need a nap
Wednesday, October 28, 2009
Tuesday, October 27, 2009
Friday, October 16, 2009
Thursday, September 10, 2009
Wednesday, September 09, 2009
Sunday, August 30, 2009
Recently I was interviewed by CBS 11 to talk about LC (lung cancer) and my particular case. This interview also mentions that there is some great research being done in the area of non / never smokers that are diagnosed with lung cancer. I really hope this will help people to understand that cancer and YES even lung cancer is an every PERSON disease and no one is excluded from one day possibly having to deal with a similar diagnosis. I never smoked but that is irrelevant; a persons lifestyle does not warrant whether or not they should or should not have lung cancer. The smoking stigma associated with cancer makes it a crime in the court of public opinion for pharmaceutical companies, government, and Joe the average citizen to contribute to lung cancer research.
Saturday, August 29, 2009
Wednesday, August 26, 2009
- Bo has developed clots and is being watched more closely by the Dukies (Duke medical staff)
- Adrienne will have a procedure to check her lymph nodes (making sure the BAC has not spread, this is a very uncomfortable but common FEAR all BAC patients had to undergo before transplant).
- I am felling ill so Adrienne and I might be neighbors at the SPA (look out nurses...)
Bo and Family
Adrienne and Family
Tuesday, August 18, 2009
Thursday, August 06, 2009
Saturday, July 04, 2009
Monday, June 22, 2009
- They don't take the precautions that should be taken when handling a transplant patient
- Most of the medical professionals I was treated by had never dealt with a lung transplant patient.
- They refused to contact the transplant doctor on call at the hospital where all my post transplant care is given.
- These doctors (loosely used) basically gave me some IV fluids, some anti-nausea meds, then sent me home (discharged at 214 AM CST) Knowing I had no one at home to watch me, not knowing if I could take my meds, and also with the knowledge that I did not have a ride home. When I told them I had no was home at 214 AM they said I could just sit and wait in the waiting room.
After this experience I hope I NEVER HAVE THE MISFORTUNE of Being TREATED at Harris Methodist Southwest's ER staff ever again.
Wednesday, June 03, 2009
Little sister was not interested in pictures she wanted to go to her school and have snacks
I am just happy that I am still around to enjoy priceless moments like this; Raegan is also helping me edit my blogs as I am not smarter than a rising First Grader.
Saturday, May 30, 2009
Today Raegan has a birthday so I celebrate, I also celebrate the home going of my father who passed away on this day last year. Reflecting on the events of a year ago, I was at a lung cancer advocacy seminar in Chicago this time last year when I got the call about my father. I knew one day the call about his passing would come, I wondered who would make the call... the call came from my mother. She told me he passed peacefully and at home. Upon hearing this news I was not as prepared as I thought I was despite all the life and death I had since over the past three years. After the initial shock I was relieved that he was at peace, he didn't have to suffer anymore, and he could now be with his heavenly father.
On this day I also strolled into the ICU where Bo was being treated before he got his double / double (second transplant). Keep fighting BJ and Family.
Thursday, May 28, 2009
Thursday, May 21, 2009
Sunday, May 17, 2009
- Running the stairs over at TCU's football stadium
- Throwing in the racquetball court for half an hour every 3 days
- Taking batting practice twice a week
- working on my forearms, and total body lifting too.
- Lastly I started back swimming once a week
I guess I will have to go back to the old me, and try and get back in the good graces with my couch, I think I will get her a nice snuggle blanket...
Thursday, May 14, 2009
Wednesday, May 13, 2009
Saturday, May 09, 2009
Thursday, May 07, 2009
Monday, May 04, 2009
Thursday, April 30, 2009
Recovering from the TCU stairs while getting ready for the media / transplant recipient softball game.
Today is the last, final.... soccer game of the Spring 2009 season.
Tuesday, April 28, 2009
Monday, April 27, 2009
Thursday, April 23, 2009
The visit was uneventful. My meds are still the same, the decreased prednisone 5mg in the morn. and Double Strength Bactrum on Monday and Thursday now. I finished my annual Lung Transplant evaluation my PFT's are up from my March Spa visit (which is good) I didn't do the 6 minute walk as that was done in March right after I got out of the Spa and it was still more than double what I had done the previous year (I think the headband, the full body suit and the healies helped).
Wednesday, April 22, 2009
Tuesday, April 21, 2009
On Saturday eve I tired running at the TCU track, it was an ugly sight I did win EVERY race though. (R3 kept challenging me to race after race until they got hungry. I tried to run a Jingle Jangle (sprints that we used to run during football across the field over-n-back over-n-back for time) I got in one ugly jingle. We finished up at the Purple Cow to celebrate the fact that I made it off the track on my own and not in an ambulance.
Wednesday, April 15, 2009
Tuesday, April 14, 2009
Friday, April 10, 2009
As I am a respiratory patient I can't garden or manicure my yard anymore, my wife is now taking an interest in the yard (landscaping) and planting flowers. She is taking over my domain and I can't find an appropriate N95 mask to keep my lungs free of the fungus and bacteria that lye within the dirt.
Wednesday, April 08, 2009
Sunday, April 05, 2009
Wednesday, April 01, 2009
Tuesday, March 31, 2009
Sunday, March 29, 2009
Saturday, March 28, 2009
The bronch hurt my joints or the medical staff from the 3 floor must have come in the room during my bronch and pounded on me. My joints haven't hurt this bad in well over a decade trying to get up and function on Sunday after a Saturday football game. I had to ask for some pain meds and several heating pads. Next bronch I think I will wear rib pads and hip pads.
Good news I didn't miss soccer game number 2 soccer game was canceled due to the cold weather in TX.
Looks like I will be burning up the highways between Dallas and Fort Worth next week.
Thursday, March 26, 2009
Sunday, March 22, 2009
Thursday, March 19, 2009
Since this most recent surgery and the cancer recurrence my meds have changed slightly. I take Prednisone (steroid) 5mg once per day and Bactrim double strength on Monday and Thursday now.
With the med change I am now walking a tight rope because my doctors and I are in a delicate balancing act. By lowering my Prednisone I will be boosting my immune system yeah fewer viruses GOOD and fighting the cancer (Jack's army, Jack's brothers, Jackass part two....).
NO ONE SAID IT WOULD BE EASY.
I had to drop yet another class as I was attempting to get my 4th Masters.... through this whole round of medical stuff SMU Bobby B. Lyle School of Engineering has been very understanding and accommodating throughout all of this. I did have a hard time doing the right thing in this situation (dropping the class) makes me feel like I am quiting.
If dropping the class was not enough I really really feel bad that I let Ravyn down today. As I was getting the girls ready for school this morning I told her that I would come and watch her at dance class today. When I picked her up she reminded me several times that I didn't come to dance class today. I had a scheduling conflict due to the war on lung cancer, I was being interviewed by the New York Times which will help break the stigma and raise awareness about lung cancer, but I sure do feel bad about missing dance class (very rarely do I get a chance to go to Ravyn's dance class). I have already promised to attend next weeks class but I already see a conflict there too, I have all day doctors visits in Dallas.
Soccer practice was good Ravyn is becoming more independent and comfortable being in a new environment.