Another BAC has been transplanted

Another member of the lung cancer family, a BAC has been transplanted, the operation took place several weeks ago and from what I hear the new transplant family member is doing well. Good luck, e-mail / call if you have any questions that I can answer.

Doc Visit in the Morn.

I have my monthly visit with the Lung Transplant Docs. at UT SouthWestern in the morn. I hope all goes well, I am a little worried about my spirometry test as I am coughing (as always) up a little bit of crude. We shall see how it goes in the morn.

Sat. in LA (West Side)

Phyllis (heart and bi-latteral lung txp Jan. 07) and me (bi-lateral lung txp Mar. 07)
Picture taken in LA, CA after lunch before I hop on my 3hour plane ride.

Cowtown Preview / Lung Cancer Conference

Good Luck in the Cowtown tomorrow Jan, your first Ultra; also good luck Ben as you compete in the Ultra tomorrow.


I am learning alot about LC (lung cancer) during the various presentations at this conference. One thing that seems to stick out to me is that research and attempts at finding a cure are grossly under funded as more than 80% of the funding for research comes from govt. agencies. LC is not a smoker’s disease it affects all of us and cripples the communities it is embedded in.

Lung Cancer is a National Crime

Lung cancer is a national crime, a national health epidemic. Statistically lung cancer kills more people/patients annually when compared to all of the other cancer(s) combined. Lung Cancer is not politically in vogue like the other cancer that society and of course our elected officials rally behind. Lung cancer will always be the #1 cancer killer until govt. and industry support research that will curb the epidemic that is lung cancer. It does no good to have funds established for programs that help lung cancer patients deal with the cancer (lung cancer) while we are going through treatment for the disease, use that money to find a cure up front and you won't need to ease your conscious by pampering lung cancer patients when we are ailing.

Bonnie J. Addario will be on Nancy Grace
Tune in to “Nancy Grace” on Monday, February 25, 20088pm ET / 5pm PT on HEADLINE NEWS“Nancy Grace” is television’s only justice themed/interview/debate show, designed for those interested in the justice story of the day. Bonnie J. Addario and Board member Deborah Morosini, MD will discuss Lung Cancer

http://www.thelungcancerfoundation.org Bonnie J. Addario

http://www.cnn.com/CNN/Programs/nancy.grace/ Nancy Grace

Lung Cancer Winter SPORE

(I am in very cold Santa Monica right now attending the LC Winter SPORE meetings. I hope that I will be able to effect change and contribute in some small way so that we can change the data, and perception of lung cancer.

I am also nervous b/c the last time I checked UNOS (The United Network for Organ Sharing) http://www.unos.org/ the website only showed two BAC lung cancer patients listed nationwide waiting for a transplant; I am hoping to see that number increase to 3 or 4 soon maybe, possibly.....

There is always HOPE; you can live dying or dye living....

Lung Cancer on YouTube & the Lung Cancer Alliance

The following video was downloaded from the Lung Cancer Alliance website. There are also 5 more PSA (public service announcements) on the site or, you can find them on YouTube (use lung cancer as your search query word) http://youtube.com/ or you can just use this link http://youtube.com/results?search_query=lung+cancer&search_type=/

http://www.lungcanceralliance.org/

More videos from the Lung Cancer Alliance website.

http://www.lungcanceralliance.org/features/youtube.html

Donor Family Letter

I finally composed an appropriate set of words to introduce myself, say thank-you, and give my condolences to my donor’s family for their loss. I hope to build a relationship with the family so they will see their loved one lives within me.

Day 2 (Mr. Mom/ Mr. Dad)

Day two was uneventful, Ravyn has messed her hair up playing all day; so I am either going to attempt to do it the best I can or pull out my clippers ..... and tell my wife she got a hold of some chewing gum.......

Update, I did her hair it looks okay you can tell my wife did not do it, she can't go all week with my handy work so Aunt Pat is going to help me with their hair this week.

3 more days until my better half returns home

Medication List

Some of the meds I take or have taken or you can expect to take post-transplant.

Medication
Prograf (Tacrolimus)
Cellcept (Mycophenolate)
Prednisone
Lasik (Furosemide)
Potassium (Slow-K OR K DUR)
Magnesium (Magnesium plus protein)
Oscal D (Calcium + Vitamin D)
Mycelex (Clotrimazole)
Bactrim (Septra); (SMZ-TMP); (Cotrimoxazole)
Nexium
Colace (Docusate Sodium)
Sporanox (Itraconazole)
Folic Acid
Valcyte (Valganciclovir)
Iron (Ferrous Sulfate)
Aredia (Pamidronate)
Reglan (Metoclopramide)
Vicodin (Hydrocodone/ Acetaminophen)
Metoprolol (lopressor)
Ambien
Warfin
Ondansetron
Starlix
Lidoderm Patches

Visit with the TCEQ

Got to visit with the TCEQ family today, and talk openly about Lung Cancer and Organ donation. I hope that I was a little entertaining. I also took the opportunity to thank them for the support they have been and continue to be to my wife and the entire family. I was also there to help Jan as she prepares to run her first Ultra marathon (2/23/08 The Cowtown) she is raising money to donate to the family, while using my story / my family’s story as motivation. I hope our story helps to cover the long tough race ahead of her.

In closing Jan will be fine the first ultra is always the toughest (like I have run one, maybe in the future once I can feel my feet)

Good Luck Jan and the rest of the Fort Worth Runners Club members
http://www.fwrunners.org/

Thanks again TCEQ for allowing to ramble on with some good information and some information that was TMI

This is also Day1 of living like a bachelor since my wife is out of town on business, the girls and I have made it so far, their hair still looks good, they have had healthy meals today, all is peaceful so far.

Neuro Optomolgist

I can see clearly now, I got the all clear from the Neuro Optomologist as I had to get my eyes checked. One of many things you must keep an eye (no pun intended) on after transplant because of diabetic concerns, cataracts, glaucoma, CMV.....

Next eye check-up will be in 6 months.

The mighty have fallen

On Saturday in between watching my daughter’s double-header basketball game(s), my younger daughter and I went out and played on the playground. While playing I decided to do some pull-ups a task I used to do with ease before LC (lung cancer). I couldn't do one pull-up, the mighty have fallen..... I have my work cut out for me ...... I have some / alot of work to do.

The other Woman

Post football/Super bowl blues..... did you really think there was another woman.... I am going through my post football blues. It seems like every February as we get closer to Valentines Day football breaks my heart and leaves me ...... (fill in the blank for yourself).

Old Material from the Dec. 2007 SMU Graduation

I just learned a new trick with the computer and blogin' so I figured I would make a video of the radio commentary from Ellie and the pictures taken by Rie.

The commentary was provide by

Ellie Hogue; Reporter, WBAP News/Talk 820

The pictures were provided by

Rie Watts; Executive Masters Program, School of Engineering.

DFW walk bio

posted on the http://www.dfwwalk.com/ website

Greetings fellow cancer saviors, loved ones, and support persons. My name is Jerrold Dash and I am a two year survivor of Lung Cancer; terminal lung cancer stage 4 BAC (Bronchioloalveolar Carcinoma).

To say I was shocked, surprised, and blind sided by my diagnosis would be an understatement. I exhibited symptoms for several years before my diagnosis February 1, 2006, but these symptoms were classified as bronchitis, asthma, allergies, and pneumonia. I never expected to be diagnosed with lung cancer being a former collage athlete and non-smoker (50% of all people diagnosed with lung cancer never smoked).

Upon diagnosis I had no choice but to fight as anyone else in my situation would have done. I was told by my temporary oncologist that I could not beat cancer and he would treat me palatively with chemotherapy until I died from the cancer. Fortunately for me I had a pulmonary specialist that was sympathetic and could relate to my situation being a young professional raising a family. I was 32 years old when I was diagnosed and my daughters were 2 and a half and 3 weeks old respectively (I will not reveal my wife’s age).

I endued as much chemo as I could stand, participating in a few clinical trials along the way while waiting for a miracle (a bi-lateral lung transplant). I must emphasis that transplant for someone with lung cancer is just not done, and insurance companies consider the procedure as experimental treatment. Fortunately I had a pulmonary specialist and doctors at Stanford that would not take no for an answer from the insurance company. I was approved by my insurance company to be evaluated to see if I could be a candidate for lung transplant, which I was. The problem with being a candidate for lung transplant is that you must be within 4 hours of the hospital performing the transplant at all times, so I packed up my truck in August of 2006 heading West to Palo Alto, CA not knowing anyone at all and leaving my wife and two young daughters behind in TX. After several months of waiting and hoping my cancer did not spread I got the page a pair of lungs was available and I was number one on the list, the surgeon informed me that I needed to get to the hospital right away. I informed him that I was already at the hospital (eating dinner in the cafeteria) and that I needed to clean my apartment before my wife and other care takers flew in and saw my messy bachelors pad.

In summation everything worked out for the best I got the transplant (March 2007), and have been working to recover physically ever since. I hope to start running a couple of miles per week starting in March 2008 (if I can get my neuropathy under control, chemo side effect). The best news is that I am cancer free since the transplant.

I think that quickly captures my story, as I am not much of a writer, if you want more details and pictures of my lungs go to my blog (cancer therapy). http://2newlungs.blogspot.com/


By Jerrold Dash

2 years and counting

Today marks two years since the correct diagnosis was made that I had BAC (Bronchioloalveolar Carcinoma). The past 24 months I hope have given hope to other BAC patients / lung cancer patients and caused the medical brain trust to rethink the outdated data they so heavily relied upon.

Time keeps ticking, I keep getting stronger, and medical data must be updated and reevaluated.

doc visits (child doc)

I had a first today, something I have not done in 2 years. I took one of my daughters to the pediatrician today (wearing a mask of course). I don't think I picked up any bugs while there but I was still nervous the whole time I was there. I can't live in a bubble though.

A few articles about BAC & Lung Transplant (late night reading)

Link to an old article regarding Lung Transplant and BAC (actually it is an abstract)

http://content.nejm.org/cgi/content/full/340/14/1071

http://content.nejm.org/cgi/reprint/340/14/1071.pdf

more recent article(s) / research

http://jco.ascopubs.org/cgi/content/abstract/22/21/4351

http://jco.ascopubs.org/cgi/reprint/22/21/4351

transplant doc visit

The visit to the Lung Transplant doctors went well today. I am still not at 100% lung functionality yet still hanging around 79 - 80% range right now so my goal for next months visit is to be at about 85% functionality.

oncologist visit

Was nervous about my visit today, I had nightmares that I would show up and they would tell me the cancer had returned. Fortunately for me that was just a dream, I still am all clear (cancer free).

I have also been asked to participate in Lung Cancer SPORE's as a patient advocate, I don't exactly understand my entire role but I am hoping to help effect change so we can gain a better understanding about Lung Cancer and how to detect it earlier and possibly derive better treatments.

SMU (Big Idea)

I want to participate in the SMU Big Idea program, but I don't know if old students (ha ha I am an old student now) can participate. The big idea I have involves spreading literature, awareness, and simply getting potential organ/tissue donors to communicate with friends, family, and LOVED ones. The most important thing to note when dealing w/ organ/tissue donation is communication is the key, signing up is fine but communicate your wishes to your family, or next of kin so there are no surprises.

Neurologist (Another doctor joins team Dash)

My Feet, My feet, my feet HURT. (A long lingering side effect from chemo (Ratt Poison #9))

Orthodics have not worked, so now I am attacking this neuropathy with new meds. (lidoderm patches, cymbalta). I think I will lean more towards the patches rather than taking the Cymbalta as I just don't won't to pop any more pills than I have to.

Oh well kick rocks.

Happy Birthday (you are two fingers now)

Ravyn had her second birthday on yesterday. It was not a big blow out just a few family members at Chuck E. Cheese we all had a blast, this birthday didn't make up for missing the first while out in CA but, things could have been worse. I could have been forced by circumstances to miss this one, Thank GOD everything worked out the way it did.

Year End Wrap-Up & 2008 Goals

Another year has come and gone so I need to set some new goals as I have satisfied last years goals.

2008 Goals are:

1. Live to see 2009
2. Increase my energy level (start doing more cardio)
3. Spend more time with my family
4. Increase awareness about organ donation and defeat the stigma associated with lung cancer