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Wednesday, October 27, 2010

PET Scan in the Morn

PET scan on Thursday morn. (test to see if the cancer has spread). I hope to talk with the transplant, oncology, and thoracic doctors within the next couple of days. I find it very interesting that now UT Southwestern doctors can do an RFA procedure for the lungs. I also find it interesting that now that I plan to go else where to deal with this nodule should it turn out to be of the AdenoCarcinoma family all the before mentioned medical disciplines would like to chime in on my pending decision. I think I will sell advertisement space and call the the decision.

Tuesday, October 26, 2010

to breakup or stay together (UT Southwestern or Baylor medical???)

As unemotional as I would like to make this post, that, is something I can not do. I am pretty pissed about several aspects of my care and condition management at UT Southwestern. Before I address the medical elephant in the room I have been advised to not burn bridges... my response is bridges burn both ways.

Let's tackle the elephant.
  • I am disappointed with the lack of communication between oncology, thoracic surgery, and the lung transplant clinic.
  • I am pissed and saying what the hell as I learn more about RFA as a minimally invasive procedure that can be used to kill cancer nodules in the lung(s).
  • If you recall I had a 1.5 cm nodule surgically removed by a wedge resection 3/2009. I have recently learned that the thoracic surgeon can do RFA procedures. My beef is why wasn't I offered this treatment option . Why did they elect to take almost 1/3 of my right lung.
  • There is are no plans in place as to how recurrences will be dealt with.
  • Oncology won't help me get my info. together to pass it on to UCLA so I can possibly have the RFA procedure done on my 5mm nodule in my right lung.

Short Rant I am getting feed-up I am not willing to give anymore huge chunks of lung tissue to research.

RFA Links: